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Thanks to the magic of the internet, we have been able to find each other and come together to support, learn and use our combined passions to move science forward towards treatments and cures for our children. We are a family led global non-profit organization.

DHX30 UNITED is registered as a 501c3 charity (making all donations from the US Tax-deductible.)

Goals of our organization:

  • Support families/Care providers of DHX30 individuals

  • Increase awareness about DHX30 and other RNA helicases syndromes 

  • Support research on DHX30 syndrome

  • Support therapeutics developments for DHX30 syndrome


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